Lila's Memorial Last Year

Last year on February 23rd was Lila's Memorial and that was the day that I gave Lila's eulogy.  This was something that I never, in my worst nightmare, thought that I would have to do but it was something that I knew I had to do. In the days leading up to her memorial, I remember being asked several times if I really wanted to do this.  There was never a doubt in my mind.  This was my only chance to get up in front of a large crowd and talk about Lila.  I was worried that I'd speak too fast but I deliberately spoke slowly and clearly.  I knew Lila was up there with me, that was the only way I could have gotten through it.  I've been thinking about that moment the past couple of weeks and I wanted to share it with everyone once again. - Mike


I want to thank everyone for being here with us to honor and celebrate the life of our daughter.  I know a lot of you took the time to travel to be here and we cannot thank you enough.  I’d like to thank Fr. Ted for traveling down from Erie.  If you don’t know, Fr. Ted married Jenny and I in 2010 and has been very supportive of us during this time and over the past few years.  Fr Mark, I want to thank you, not only for baptizing Lila, but for all the support the parish has given us these past few weeks. We joined St Thomas More only a few months back when we were deciding where to have Lila baptized, and the way people have treated us these past few weeks makes us feel like we have been coming here for years.

When Jenny and I got married, it took almost a year to plan an event for 300 people to join us to celebrate our lives.  Today we have around 200 people here for Lila, all done in less than 2 weeks.   This is just one example of how Lila has touched all our lives.  Everything that all of you have said and done for Jenny and I has given me the strength be able to stand up here and tell you about our Sweet Lila.

It’s still hard to believe that this is actually happening; that I’m standing here today talking about Lila at her memorial. Lila would have been three weeks old by now, we should be at home with her, watching her grow everyday. We should be learning more and more about her little personality as the days go on, not talking about her in the past tense. In her short time on earth she changed our perspective on life.  Even now it is hard to leave the house - Jenny and I still feel like we are leaving Lila with the babysitter and that she will be there when we get back.  When it’s just the two of us at home, we think Lila is sleeping in the bedroom.  When we wake up in the morning, we pause for a moment waiting to hear her cry. We are in shock and will probably never get the answers that we are searching for.  And it doesn't really matter because those answers won’t bring Lila back.  

When Jenny was pregnant, you may have noticed that we didn’t go anywhere or do much of anything.  We wanted to make all the right choices, do anything to make sure Lila was healthy, and never do anything to put her in jeopardy. We even started drinking organic milk and used olive oil based soap because we thought it was better for Lila if Jenny used natural products. We joked about Jenny still not having a job after all this time, but her job was going to doctor appointments and eating healthy.  It was all for Lila.  We both would have done anything for her no matter what the sacrifice was.  Our pregnancy went smoothly and the doctors said everyone was doing great and we had no reasons to ever be concerned…right up until the birth.

I'm usually a pretty positive person and my purpose today is not to tell you how awful and sad this is, I want everyone to know how much our lives have been touched and tell you about the great times we had with Lila. I want you to get the chance to know a little bit about Lila since most of you never had the privilege of meeting our sweet girl.  I want all of us to celebrate her life and not focus on her death. Her brief life has forever changed us.

Ever since we found out we were having a little girl, all I could think about was all the things that we were going to do together.  I looked forward to having tea parties and playing dress up, whatever she wanted me to do.  I had plans to take her out on daddy and daughter dates, probably to baseball games so she could learn about the things I liked to do. I started growing quite fond of the color pink and Daddy’s little girl onesies.  For Christmas this past year, Jenny bought a pink onesie that read “My Daddy is the Best Mechanical Engineer in the World.”  Which was very sweet…. but also very true and I could not wait for her to wear it.

I would talk to Lila in Jenny’s belly, telling her all the things we had planned for her.  We told her all about her little friends that were excited to meet her, some of which are here today.  I told her that she already had me wrapped around her little finger and that I would do anything for her, within reason of course.  The one thing that I said to her that I was going to push was running, since we got a great running stroller.  I picked out the orange model so that people would notice us more when we were out running together.  When Lila was here, I asked her if she wanted me to organize a 5k race in her honor.  I was shocked when she responded to this question but I was even more surprised because she gave me a thumbs down.  I'm going to do it anyway because that's what dads do; we do things that our kids don't want us to.  Plus I just think she was messing with me.

She was the most beautiful baby, and I’m not just saying that as a proud father. Just looking at her, you can’t help but stare at her full lips.  You could even tell that she had full lips in some of the ultrasound pictures.  The nurses in the NICU told us they were jealous and commented that people pay to have those lips.  Everything about her was so perfect that at times we could not believe we were in the NICU with her, she seemed like such a healthy baby to us that she should be at home where she belonged. We couldn't find any weird scratches or birthmarks on her either.  Lila also had the softest skin and the cutest little nose and ears, which I am thankful for because I was worried that she would take after me and get my big ears and nose. 

She also had, by far, the best hair in our family. It was very short and thin in the front and grew the longest in the back.  I know what you are thinking and it wasn't a mullet, it was too cute to be a mullet. Everyone thought Lila would have curly hair like Jenny but after it got washed, her hair was poker straight.  But we were still holding out hope that as it grew, it would start to curl.

In Lila’s eight days, we started to get to know her tendencies.  She would sometimes fall asleep and point her index finger.   She would blow bubbles a lot and liked to grab onto peoples fingers.  When I kissed Lila’s forehead, she would open her eyes and look right at me.  This melted my heart.  She liked it when Jenny would brush her hair but wasn’t too thrilled when I combed the little hairs she had on her arms and shoulders.  Lila only had one bath but she absolutely hated it.  The look of disgust on her face was priceless. I could just tell she would have cried every time we gave her a bath at home. I wish we would have had that chance.  

Lila had, at times, what Jenny calls “her frog legs”.  Whenever Lila had a diaper change, she would bend her legs up like a frog and wouldn’t let you push them back down to fasten the diaper.  It was fitting that someone donated a blanket to Lila that had frogs on it.  I also would talk to the guys at work about how excited I was to change her messy diapers.  They thought I was nuts but I really was looking forward to it.  Lila didn’t have any messy diapers at the NICU that I could have changed, but she gave us one about an hour before she passed.  That was her last gift to me, letting me change her messy diaper. 

Everything was going to be better with Lila.  Paying bills, washing the dishes and going to work were going to be that much better because when I was finished, I would get to see my sweet Lila.  We were able to get Lila Baptized before she passed and that was one of the proudest moments of my life.  Seeing her in Jenny’s christening gown is a moment I will always cherish. The eight days of having Lila in our lives were the eight greatest days of my life.  Lila has taught me unconditional love.  I don’t think I really knew what that was until the moment I saw her.  Lila was our gift, the answer to our prayers.  Lila is an irreplaceable part of Jenny and I.  The day that Lila passed, a piece of me died as well.  I’ve had a pit in my heart since that day that I imagine will never go away.

The only thing Jenny and I know going forward is that we are going to do everything in our power to keep the memory of Lila alive through ourselves and others.  We have been asked time and again by everyone what they can do to help and there is a simple answer to that question.  Never forget Lila. Let her legacy be a living one.  Do something on her birthday next year to remember her. Do something in her honor and let us know about it. Some of Jenny’s friends had a good idea to help us start this off.  They had red and pink stones engraved with Lila’s name.  People can take the stone with them on trips or vacations or anywhere to show Lila parts of the world she didn’t get to see.  Please pick a stone up at the lunch following mass today and send us a picture of all the adventures you took Lila on.

Having Lila around was going to make every minute of life better.  The grocery store, running, car rides were all going to be better.  She was part of us and she gave my life a new sense of purpose.  We were and still are a family.  I wish that I were standing here today giving Lila away at her wedding instead of gushing about her at her memorial mass.  There is so much that we were not able to do with our Sweet Lila, but I am so very thankful that Jenny and I were able to spend the eight greatest days of our life with our beautiful baby girl, our sweet angel.

50 States

Lila Stone in North Dakota

Lila Stone in North Dakota

We received pictures of the Lila stone in North Dakota recently. (Thank you Crystal!) That means as of now we have a picture of a Lila stone in all 50 states. We first passed out the stones at Lila's Memorial Mass on February 23, 2013 and we got the North Dakota pictures on February 17, 2014. In just under a full years time, someone has taken Lila and her memory to every single state. Mike and I thank everyone so much who has ever gone out of their way to take a picture for us. If you got us a state or just sent a  picture at all, thank you. It means so much to us and we cannot believe how many pictures we have gotten. Lila is truly an amazing little baby who helped inspire this project. Keep on sending your pictures too, we would like to still be getting new pictures years and years from now. In the first year we collected 860 Lila stone pictures and so far in the second year we have 89! Amazing! Now lets see what we can do the rest of this year. 

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Mike and I still planning on traveling to North Dakota too. Just because we got the pictures does not mean we will not go there. We are trying to figure out the details of when and where in North Dakota, but it will happen. We feel strongly that Lila had a hand in picking North Dakota to be the last state after we said we would go to that one ourselves. There must be something there she wants us to see or experience and it will be a great tribute to her. 

Taxes and College

I knew this was coming but didn't think it was going to bother me this much.  I file my taxes online through a website.  I knew I was going to have a lot of check marks to click in the "Life Changes" section.  Bought a house in 2013? Check.  Had a baby in 2013? Check.  Any deaths in the family? Check.  This was fine, as I was anticipating having to do this.  The very next page talks about a death in the family and how sorry they are for our loss and will guide me through any tax implications.  That was fine.  A few pages later was a page congratulating me on having a baby and the first line said "You've experienced the joy of welcoming a new family member. Your bundle of joy also qualifies you for more tax benefits." The page proceeds to refer to the new baby as a "sweetheart" and talks about the credits/exemptions we can take and how to start saving for college.  Aside from the obvious reason why this upset me, I knew how we were going to save for college for Lila. I had it all figured out.

This reminds me of another commercial on TV that I can't stand.  It's that Gerber Life college plan commercial with a bunch of parent sitting around drinking coffee.  A few joke with how they have no clue how to start saving and don't know where to start.  Then the another annoying couple talks about this plan, etc, etc.  It just digs at me because I had this figured out before Lila was born.  Lila would have been just one year old now, but since she's gone I think about everything that she didn't not get the chance to do.  This is just one example of that. - Mike
 

What we did on Lila's birthday

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Lila's birthday was a very hard and surreal day. There were many moments of breaking down and trying to grasp that this has really happened. I might write a post about how we feel about it being one year after seeing her again and go more into that at some point. For now though I wanted to share what we did on her actual birthday throughout the day to honor her. These things helped us a lot to feel closer to Lila and that she would have enjoyed all the attention being about her. I almost canceled the birthday party we had planned that night as it felt too overwhelming, but in the end I am glad we went through with it because it was very helpful to be with friends and family who we could talk openly about Lila with. 

Our grief therapist told us to plan out every hour of her birthday so we would have options on what we could be doing. She also said that if we don't feel like doing one of those options, then no big deal, just do what feels right. It was helpful to have a plan to fall back on if we wanted to or just do nothing if that felt more right. 

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We ended up sleeping in and laid around the house for a while. We enjoyed reading the massive amounts of text messages, emails and cards we received this day. Thank you to everyone for that, it helped so very much. We then went outside and released one pink balloon for Lila. It was nice and the balloon soared rather high into the sky as I was worried it would get caught in some trees.

 

 

Then we went and worked on the slideshow of all of the Lila stone pictures we have received in the last year. It was upsetting at times as I still cannot believe how many people have been touched by Lila and have sent a picture to us at some point. Or how many people even have a Lila stone. It makes me sad to think that there are so many people out there who Lila will never get to meet. Yet it is healing for us to see these Lila stone pictures and we ask that you keep on sending them in. We plan to do a slideshow of pictures every year on her birthday and the more pictures we have the better. 







Our front porch covered in glitter 

Our front porch covered in glitter 

We also went outside and sprinkled pink glitter all around our house in the snow for her. It looked so pretty with the pink up against the glistening snow. Mike also spelled out her name with it. All these days later and the glitter is still there and we keep finding it in the house. We feel that it is Lila's way of saying hello to us. 

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Visiting the mausoleum was the most painful and sad part of the day. We brought flowers for Lila and tried to spend time there with her, we also sprinkled more pink glitter around here. There happened to be a funeral going on at the same time so there were a lot of people there and it just was so not helpful to us at the time. I felt rushed and didn't want to be around strangers which was making it even worse. Seeing her date of birth on that mausoleum and knowing it was one year later was devastating to me. I couldn't stop crying and saying over and over again how she should be home with us, not there in that place. 

It was at this point in the day that I almost cancelled everything we had planned for that night. We decided to go on as planned though and got all of the food and drinks together for the evening. I took a nap and felt a little better about our plans and shortly after our friends and family arrived. We cannot thank those people enough for what they did for us that night. Everyone talked about Lila and celebrated her and seemed to have an overall nice time. 

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We started the night with dinner and drinks. Mike bought wine and beer that he said the names reminded him of Lila, such as this one as he always thought he might call her Lala by mistake sometimes. 

 

 

 

 

 

 

 

 

 

 

 

 

There was a table we set up with some of Lila's things and a few pictures on it. Things like her hats and blankets and a moulding of her handprints. 

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Everyone enjoyed the make your own cupcake bar where we asked people to decorate a cupcake in Lila's honor. We had different types of frosting and cupcakes and decorations and let everyone put it together themselves. We got all sorts of different ones and it was a lot of fun to do. Plus I feel that Lila would have enjoyed cupcakes as much as her Mom does. 

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The night ended with a trip outside in the cold to light the 36 inch long sparklers we had. The goal was to see if we could spell out Lila's name with them, but it did not go as planned. It was fun though to have a group of adults outside in the cold of January lighting sparklers though.  

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We did not know what was going to feel right for us on Lila's birthday. The day itself was very very difficult. The party at night felt good though and we know Lila would have had a great time herself. If only she could have been there in person. 

Lila Snow

Yesterday marked one year from the last time we saw and held Lila.  She passed away at night at the Children's Home in Pittsburgh.  When we left there on our way to a hotel, there was such a pretty light snow falling.  I don't remember much from that drive but I do remember how peaceful that snow was.  Jenny made a comment on that drive that maybe this was a sign from Lila.  From that point on, we know that type of snow as Lila snow.  Whenever we see Lila snow, we think of Lila.  There have been several tough days for us over the past year and on several of those days, it was Lila snowing.  It gave us a little bit of light to some very dark days.  We associate that snow with Lila's presence and whenever we see it, it warms us a little bit and is comforting.  It's hard to tell in the picture below but there is a very light snow falling.  That was the only snow that fell yesterday at our house.  We think Lila worked very hard yesterday to make it snow just that little bit for us yesterday.  It was one year after one of the worst days of our lives and we thank Lila for giving us that little bit of snow. 

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